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Podcast: Unproven treatments
We talk to BBC reporter Ramadan Younes and Professor Robert Maclaren following the BBC documentary Blind Faith
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Featured
We talk to BBC reporter Ramadan Younes and Professor Robert Maclaren following the BBC documentary Blind Faith
Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery.
In this edition of Blindingly Chatty, Laura Tyler and Mark Pampel follow on from the subject of musical instruments and discuss composition, improvisation and performance.
Our West Yorkshire peer support group recently welcomed The Blind Poet, Dave Steele, who is living with retinitis pigmentosa, to their meeting. He talks candidly about his diagnosis, his poetry and his optimistic mindset.
This podcast covers the most important professionals who work with the sight loss community, along with their abbreviations and what they do to improve people’s lives.
On this episode Laura Tyler, Yanan Yu, and Steve Golden talk about their experiences with learning and playing instruments, and how people with sight loss can play and learn no matter their level of vision.
In this episode Laura and Mark talk about their dreams and how they see the world in sleep. Mark is living with retinitis pigmentosa so his sight has deteriorated over his life, whereas Laura lost her sight at a very young age. They also briefly cover Charles Bonnet Syndrome (CBS).
Have you ever really thought about how you use your sensations after sight loss? Does your sense of humour relate to your ability to tell a joke or hear a joke? Find the answers to these questions and more in our ‘Blindingly Chatty’ podcast from Laura and Mark.
With a significant proportion of inherited retinal conditions being caused by unidentified genetic faults, and many families unable to get clear results from genetic tests in clinic, the project set out to solve previously undiagnosable cases and discover more of the genes and mutations that are associated with sight loss.